I was interviewed about life with severe ME

Photo by Rob PotterLast week, Emma over at Not Just Tired interviewed me about my life with severe ME.

“My main symptom is and has always been pain. It’s constant. The best I can hope for is that it doesn’t get worse than bad. Bad is bearable. Unfortunately it’s often worse than bad, and sometimes it’s unbearable. In February and March for example this year it was unbearable for 8 weeks without a minute’s relief. Difficult to describe what it’s like existing inside of those long episodes without getting darker than I’m comfortable sharing here.”

Interview: An insight into life with severe ME

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10 Responses to I was interviewed about life with severe ME

  1. Margaret says:

    Hugs, David. Nothing surprising in the interview, but a good description of the compromises and your forward looking perspective.

    Just one tip, though. They prescribe anti-depressants often with chronic pain, but the ones that work best are the ones that don’t work as anti-depressants unless you’re a chronic pain sufferer…in which case they work because the help reduce the pain. So, don’t get turned off by the label in exploring non-opioid solutions that are called anti-depressants. Check into their history and just who is less depressed using them :).

    Hope this doc is able to find some good solutions for you. Even an extra hour is golden.

  2. Ashe Elton Parker says:

    *hugs* David. You really are courageous and a thoroughly admirable person. I don’t think I could have gone on as long as you have if I had to suffer as you do. You’re an inspiration. 🙂

    • (((Ashe))) Thank you, my friend. But, ugh, I don’t know about that. I just grind my teeth and stubborn on. 🙂

      • Ashe Elton Parker says:

        Even stubbornness can be inspiring, and yours is. As I said, I don’t think I’d have gotten as far as you have if I had to live with constant pain. But as much as I admire your tenacity, I wish I could take away your pain. I hate to see people suffer, especially friends. *hugs*

  3. Hugs and prayers always, David. Thank you for sharing the interview with us. I admire your tenacity and grit, and I hope working with the new doc brings more relief.

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